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19th Workshop, Barcelona: "Practical aspects of progressive patient access to OMPs, post-marketing evidence generation and related pricing questions" 19 Aug 2013 | 07:50 pm
date_published: October 2013 19th Workshop of the EURORDIS Round Table of Companies - October 15th, 2013 (9.00 to 16.00) "Practical aspects of progressive patient access to OMPs, post-marketing ev....
petition test 19 Aug 2013 | 02:51 pm
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Newborn screening 27 May 2013 | 02:21 pm
date_published: May 2013 Newborn screening is the process of systematically testing newborns just after birth for certain treatable diseases. Ideally, this practice is part of a larger programme th....
Resource Centres for Rare Diseases 15 May 2013 | 05:59 pm
date_published: May 2013 Actions performed by Resource Centres are generally specifically targeted to people living with rare diseases. These centres often function in partnership or cooperation wi....
Adapted Housing Services for Rare Diseases 15 May 2013 | 05:57 pm
date_published: May 2013 Adapted Housing Services represent a particular type of service, often associated with multiple disabilities. Sometimes called ‘therapeutic apartments’, these services allo....
