Prayingfornoah - prayingfornoah.com - Praying For Noah

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Beginning to breathe again 27 Aug 2013 | 02:45 am

The last couple weeks have been some of the most disorienting, disconcerting, stressful weeks of my life.  I feel like I've been in some sort of cosmic rock tumbler - never doubting that our lives wou...

Happy Birthday, DEAR Noah! 12 Aug 2013 | 01:05 am

On behalf of Noah and our entire family, I'd like to thank each and every one of you who prayed, sent cards/gifts/emails/messages, visited, or showed love in any other way to make our dear boy's big d...

Prayers needed 8 Aug 2013 | 04:46 am

We had a long meeting this morning with the nurse manager from the nursing agency that provides our private duty nursing.  Apparently there were things put in place by the previous nurse manager that ...

Thursday update 2 Aug 2013 | 03:52 am

While Noah's labs look rough, he continues to look reasonably good.  He's obviously not feeling well at all but is not what we call "scary sick."  He's able to be awake and alert which is very, very g...

Sick boy 1 Aug 2013 | 07:46 am

Noah is pretty sick.  I'm running around like a chicken with my head cut off, so I'm just cutting and pasting three updates from Facebook. UPDATE ONE from FB (last night) Noah has been hurting a good...

This and that 30 Jul 2013 | 06:19 am

I've got all sorts of odds and ends to cover in this post!  Noah is doing OK.  As expected, his EEG did not show any seizure activity. That's not necessarily great news.  Noah is showing very signifi...

He is our hero 26 Jul 2013 | 02:42 am

Jeff and I put together a new video of Noah.  We want people to see that even very medically fragile children can really live life to the fullest.  It's set to one of his favorite songs (which we just...

Yesterday 20 Jul 2013 | 09:33 pm

For those not on FB, I'm sorry I wasn't able to get on here yesterday and update.  I wasn't able to post much even on FB so I wanted to put it all together in one place here. This past Tuesday (4 day...

Dear Kate-Back-Then 18 Jul 2013 | 10:44 pm

Well, it took me long enough but I finally have a new look for the blog with a more current picture of Noah.  I'm working on getting a good headshot of him with his glasses so I can make it even more ...

A couple of prayer requests 16 Jul 2013 | 02:04 am

Noah's EEG went well on Friday.  We don't have the results, but the procedure itself went pretty smoothly.  The EEG tech couldn't really share her opinion but she DID repeatedly express surprise at ho...

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