Ulf - ulf.org - United Leukodystrophy Foundation
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Benefit Raffle and Shire HGT MLD Clinical Program Update 14 Apr 2012 | 07:54 am
The 2011 Benefit Raffle The 2011 Benefit Raffle winners are: -Suha & Muhamad Z. of Il. won 1st place prize of a one week stay at Orange Lake Resorts in Kissimmee, Florida -Kathryn H. of Fl. is our 2nd...
Social Security News 14 Apr 2012 | 07:32 am
Social Security Announces New Conditions for Compassionate Allowances Program. There have been some Leukodystrophies listed. Michael J. Astrue, Commissioner of Social Security, today announced 52 new ...
Untitled 14 Apr 2012 | 02:57 am
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Dylan’s Dance 10 Feb 2012 | 05:32 am
Featuring The Frank Palombi Orchestra and The Eddie Rodick Orchestra From Cleveland, Ohio Benefits “Dylans Quest For the Cure” Sunday, April 15th, 2012 Sygan S.N.P.J. Social Hall Doors open at 1:00 pm...
October 10, 2011 11 Oct 2011 | 03:06 am
October 10, 2011 The University of Pittsburgh, Graduate School of Public Health, Department of Human Genetics, will be conducting a research stud to characterize the genetic mutations that cause Autos...
February 14, 2011 15 Feb 2011 | 04:06 am
February 14, 2011 If you or someone you know is a bone marrow, stem cell or cord blood transplant survivor, you hve vluable insights to share! Researchers at the Fred Hutchinson Cancer Research Center...
July 20, 2010 21 Jun 2010 | 03:05 am
Milan, July 20, 2010 Dear colleague, The present letter is to update you on our clinical experimentation of gene therapy for the treatment of Metachromatic Leukodystrophy (MLD), currently active in th...
May 06, 2010 7 May 2010 | 03:05 am
Natural History Study of Krabbe Disease underway in the US Posted May 6, 2010 Title of study : A Longitudinal Observational Study That Will Evaluate Prospectively Clinical and Surrogate Parameters Tha...
March 11, 2010 12 Mar 2010 | 04:04 am
March 11, 2010 Lovastatin in X-linked adrenoleukodystrophy Marc Engelen, M.D. & Stephan Kemp, Ph.D New England Journal of Medicine 2010 Jan 21;362(3):276-277. In 1998 it was reported in the New Engl...
March 04, 2010 5 Mar 2010 | 11:34 am
Milan, March 04, 2010 San Raffaele Telethon Institute For Gene Therapy (HSR-TIGET) <Metachromatic Leukodystrophy (MLD This announcement is to inform you about the forthcoming opening of a clinical exp...
